Why?

My daughter Eden was diagnosed with Biliary Atresia when she was 2 months old. She has since had a Kasai, and just received part of her mother's liver at 18 months, in Nov of 2009.
I want to create a network for families with liver diseases in Utah something similar to Intermountain Healing Hearts but for Livers.
We would like to have get togethers a couple times a year. If you would like to know when the next one is please email me at douglai@gmail.com also if you would like us to add your blog or carepage or any other links.

Thursday, July 26, 2012

Dash for donations


Mark your calendar for August 11th. 8am.  http://www.yesutah.org/content/5k_dash 
You need to register before Aug. 8th.  There is a 5 k run, and a 3 k walk we usually do the walk. Usually just do the team registration because more than 5 of us go. So $20 then kids are $15. You get a shirt, They have prize drawings, and Dryers is usually there with free ice cream or Popsicles. They have the donor taxi there for pictures etc. Fun event to raise awareness. Today at a meeting I was at with Barbara she said they should be coming out with a new commercial soon, and she has been pushing to have a liver story for Yes Utah! I told here it might be fun next year to have the taxi and organ donor families walk in the days of 47 parade together. 

I am looking at having a get together in September. 

Hope to see many of you at the Dash for Donations.

Posted by Douglas Lai at 9:08 PM 5 comments  

Sunday, October 23, 2011

SL Tribune Article


Article in the SLTribune on living donations for liver transplants. They are going to start adult to adult in Utah. http://www.sltrib.com/sltrib/news/52676311-78/liver-transplant-donor-transplants.html.csp

Posted by Douglas Lai at 7:06 AM 0 comments  

Tuesday, August 16, 2011

Fox 13 Bike Ride

Posted by Douglas Lai at 11:05 PM 0 comments  

Fox 13

Posted by Douglas Lai at 10:40 PM 0 comments  

2 News

Posted by Douglas Lai at 10:39 PM 0 comments  

Saturday, August 13, 2011

15 Year Transplant Reunion

August 28th 2011 will mark the 15 year anniversary for the Liver transplant team at Primary Children's Hospital. Since then they have done over 150 liver transplants. Around 200 people attended. Dr. Linda Book highlighted the first, latest, oldest, and youngest recipients. There were also several in attendance that are waiting for transplants.
If you attended today and picked up a business card for Utah Liver Families please email me douglai@gmail.com if you would like to be added to our email list. We try to get together several times a year. Our next get together I am thinking early October at Wheeler farm if they still have wagon rides, and if they have a pumpkin patch.

We were featured in ABC 4 news and Fox 13 during the 5pm news. When they have online links I will update the post.

Thank you transplant team and Primary Children's Hospital


Posted by Douglas Lai at 6:33 PM 0 comments  

Tuesday, July 19, 2011

15th Annual Dash for Donation and a 15 year Celebration for the Liver Transplant Program at PCMC

Dash For Donation

Saturday, August 13, 2011 - 8:00 a.m.

You are welcome to join Team Eden or create your own.

http://www.yesutah.org/content/race_registration

Day of Race Registration and Check in begins at 6:45 a.m.

$27 Single Pre-registration
$20 Team - per person
$15 Youth 18 and under
$30 Late Registration


Save $7 per person by creating a team of 5 members or more.
Cost for single registration will go up to $30 after August 11. Online registration will close at midnight on August 10.
There will be two locations, so be sure to choose your preferred location when you register.
PCMC's Liver Clinic Picnic
From 1-3 pm August 13th the Liver Clinic will be celebrating 15 years of the transplant program. There will be activities, food, etc.
Contact: Barbie Robinson: 801-662-3716

Posted by Douglas Lai at 9:03 PM 0 comments  

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