Why?

My daughter Eden was diagnosed with Biliary Atresia when she was 2 months old. She has since had a Kasai, and just received part of her mother's liver at 18 months, in Nov of 2009.
I want to create a network for families with liver diseases in Utah something similar to Intermountain Healing Hearts but for Livers.
We would like to have get togethers a couple times a year. If you would like to know when the next one is please email me at douglai@gmail.com also if you would like us to add your blog or carepage or any other links.

Monday, February 21, 2011

May 19th walk and 5k run for American Liver Foundation

On May 19th, we will participate in the Liver Life Walk to raise funds for the work of the American Liver Foundation – the nation’s leading nonprofit organization dedicated to liver health and disease prevention. I hope you will join me on team Liver Life Walk - Provo Style. Beyond raising money for a worthy cause, the Liver Life Walk is a fun event for the whole family!
Liver disease is often unknown or misunderstood. Here are some compelling statistics:
1 out of every 10 Americans is affected by about 100 types of liver disease.
That is 30 million people — the number of people in the United States living with diabetes and cancer combined, and the same number of people who live in America’s 15 largest cities.
60% of the 26,000 people who die each year from cirrhosis have no history of alcohol abuse.
Nearly 17,000 people are on the waiting list for a liver transplant.
The American Liver Foundation (ALF) is dedicated to a future where there are effective treatments, cures, and no one dies waiting for a liver transplant. The ALF mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.
Participating in the Liver Life Walk is an opportunity to do something good in the community, work toward a future free from liver disease, and support the 30 million Americans affected. Start today
Join our Liver Life Walk team,
Make a personal contribution to this worthwhile cause, and
Raise funds for research, education and advocacy.
You can register at www.liverfoundation.org/walk and follow the prompts to register for the walk on Team Liver Life Walk - Provo Style. When you register, you will receive valuable fundraising tools and information from the American Liver Foundation, in addition to your own personal fundraising Web site.
Liver Life Walk & Twilight 5K Denver 2011 on May 19, 2011!
If you are unable to participate but would like to support my efforts with a contribution, you can donate online athttp://go.liverfoundation.org/site/TR/LiverLifeWalk2011/LiverLifeWalk?px=1690174&pg=personal&fr_id=2570
With your help, we will fund important work and raise awareness of these diseases that afflict millions of people. If you have questions about the Liver Life Walk or the work of the American Liver Foundation, please do not hesitate to contact me. Thank you in advance for your support!
Sincerely,
The Lai Family
Team Liver Life Walk - Provo Style

Posted by Douglas Lai at 8:38 PM 0 comments  

Thursday, August 26, 2010

September Get Together

September 18th 11AM
Sugar House Park
2100 South 1350 East
Playground– Located next to Parley’s Creek Pavilion in the center of the park.
Bring your own lunch get together event.
We were not able to reserve the pavilion but there are tables next to the playground.

Posted by Douglas Lai at 9:18 PM 0 comments  

Friday, July 23, 2010

Super Clark Balloon Release

To honor Clark (and support his family), a balloon release will be held on his birthday next Tuesday. Information as follows:

When: Tuesday, July 27, 2010
Where: Olympic Park, Lehi UT Map: http://bit.ly/9Ril87
Time: 6:00pm (Balloons to be released at 6:25pm sharp. Arrive early enough to fill your balloon with helium, put a message for Clark in it, etc.)

The balloons will be provided. If you'd like to bring your own pre-filled helium balloon, make sure it's green (the national color for organ transplants.) Kristin will have the Super Clark shirts there for those who'd like to purchase one. More balloon release info: http://bit.ly/akYMB6

If you're unable to make it to Lehi, feel free to release a green balloon wherever you are. (Send pictures to Kristin so she can post them on the blog! klkimble@gmail.com)

Posted by Douglas Lai at 4:15 PM 0 comments  

http://utahliverfamilies.wikispaces.com/

Wikispace for Utah Liver Families.

I have just been learning about wiki spaces in a class this summer. I like having the blog as we can see the latest on families. But I also like the the wiki because we can have a discussion forum there. So I have set it up. Then can have a bit better communication between families in the Intermountain region. Please feel free to join.

Doug...

Posted by Douglas Lai at 3:55 PM 0 comments  

Friday, June 11, 2010

Super Clark





Super Clark has gone to his Heavenly home. His battles are over now.
Peace at last.
He has fought the good fight.

Posted by Douglas Lai at 11:02 PM 0 comments  

Sunday, May 30, 2010

Dash for Donation Registration - Sugarhouse Location

August 14th 8am
$20 for each team member. Get a shirt and donations go to Utah Donor Registry.We can be team "Utah Liver Families"
Wondering if we want to get a team together for the 2K walk so the kids can do it too. They also have a 5k run for those interested.

https://www.yesutah.org/content/slc_race_registration
Please leave a comment if interested.

A 5K run, titled "Help Hayden Heal", will be held July 17 in Pleasant View, Utah. You can mail in your pre-registration forms to: Help Hayden Heal, P.O. Box 13407, Ogden, UT 84412-3407. The runners will pick up their packets and any pre-registration stuff will be done that morning from 7am - 7:45. Then the run will begin at 8am, following the run will also be a silent auction.

The registration donation is $30 per person, however you can register in advance for only $20. A registration form can be downloaded from Hayden's web page - http://www.familyforever.com/Hayden

Posted by Douglas Lai at 8:58 PM 0 comments  

Utah Liver Families Picnic



Yesterday was a fun day despite being a little cold. We had our 3rd Liver Families get together. Lulu and Charlie were both there and got to meet some new friends: Kai and Paige.

Posted by Douglas Lai at 7:07 AM 0 comments  

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